We started off the day in RT ( rapid treatment ) bird had to get an infusion. That took a while so we hung out and played. B was ALL OVER THE PLACE! She was in a big girl bed instead of a crib and was pretty proud if herself. She couldn't hold still!!! It's crazy how good she is at getting around now even when she's hooked up to so many things.
We ordered some scrambles eggs for breakfast this girls FAV! She always yells for dad when she eats them. Probably because he's the master egg chef at our house. Today birds favorite part was playing drums with the the utensils.
After that was over we went up for a follow up appointment with Dr J. Bird got a good report we adjusted a few meds. Planned to take the staples out on Monday!!!! Yay!
So Berkley is the first patient Dr J has had from diagnosis to transplant. Cool thing is she ended up getting her liver on his birthday!!! Yay, they will now forever share a special day! We are so thankful for all he's done to get us to this point.
Ok so a while ago we got some paperwork to get a handicapped sticker. I figured we didn't really need it. Yesterday I changed my mind! It was. POURING rain, I had to park, unload a stroller load it with oxygen, a feeding tube bag, a cooler of meds, a diaper bag, and a bird. All while trying to juggle an umbrella ( with no success ). It was beyond comical! Then I finally get inside and realize I left my purse!! ARE YOU FREAKING KIDDING ME!
Yeah so now when you see a Buick roll by with a handicapped sticker. Look twice there's a slim chance it's ME,and not just a 90 yr old lady!
She looks so great!
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